Abstract
Physical and emotional health problems and hope in children with thalassemia and hemophilia are very
important to study as they are linked with primary caregiver’s burden. The aim of the present study was
twofold; 1) to investigate the physical and emotional health problems that can affect the hope in children with
thalassemia and hemophilia. 2) to examine predictors of the caregiver’s burden. The sample was comprised of
100 children (50 children with thalassemia and 50 children with hemophilia) and 100 caregivers (i.e., one
caregiver with each child, n=100). The sample was selected through purposive sampling technique. The
participants between 8-16 years were taken from private and public blood transfusion cells of Lahore. Three
tools besides demographic information sheet were used to collect data. The participant’s hope was screened by
using Children’s Hope Scale (Snyder, 1997), the Pediatric Symptom Checklist (Jellinek & Murphy, 2003) and
Zarit Burden Interview (Zarit, 1983). The results showed that male children had more physical and emotional
health problems than female children. However, they were more hopeful than female children. Female
caregivers experienced more burden than male caregivers. There was a negative relationship between physical
and emotional health problems and hope of children. Furthermore, male gender, first birth order, physical and
emotional health problems, hope of the children, young age and gender of the caregivers being female were the
significant predictors of caregiver’s burden.
Amina Muazzam, Sumble Javed. (2013) Predictors of Caregiver’s Burden: Interplay of Physical and Emotional Health and Perceived Hope in Children with Thalassemia and Hemophilia, Pakistan Journal of Social and Clinical Psychology, Volume 11, Issue 2.
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