Abstract
Thalassemia is a genetic blood disease which passes from parents to their kids. It is a main health disorder in Pakistan and South Asian nations. About 6-8 % of residents of Pakistan are thalassemia carrier’s traits. The patients of this disease need medicines and ordered blood transfusions throughout their whole lives, but that process strongly impacts the patients and their families, mainly the mothers of the patients disturbed a lot. The main objectives of this research were to explore the issues of mothers having thalassemia major children and to dig out the effects of Thalassemia major on the mothers of the patients. This qualitative study explored the lived experiences of 20 mothers of children with thalassemia major by conducting semi-structured interviews. The present study was conducted at the Thalassemia Centre of the Children’s Hospital & the Institute of Child Health Multan, Pakistan, and data were analysed by using content analysis. Ethical approval was obtained from the ethics committee of the Hospital for the data collection process. It was found that thalassemia major disturbs the well-being of the mother’s life, and very few mothers had adequate knowledge about genetic disorders. The majority of the mothers were strained due to their children's sickness and regular transfusions of blood. They were afraid about their child’s current status and their upcoming. They were anxious about the child's presence, learning and hitches. The majority of the mothers identified the effects of illness on their children’s school presence. The study suggested that healthcare experts, including social workers, should teach and apprise the mothers obviously about the thalassemia disease, its management, and deterrence. Civic support agendas must be established officially to support thalassemia patients and their caregivers, especially their mothers.
Dr Zahid Zulfiqar, Dr Kamran Ishfaq. (2024) MOTHERS' EXPERIENCES REGARDING THEIR CHILDREN WITH THALASSEMIA MAJOR IN MULTAN, PAKISTAN, PAKISTAN ISLAMICUS (An International Journal of Islamic & Social Sciences), PAKISTAN ISLAMICUS: January - March: 2024; Vol-04 Issue- 01, Issue 01.
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